The story of Ben Williams
At the age of 50, I had surgery for a glioblastoma multiforme on March 31, 1995, after an MRI after an MRI scan in the emergency room the day before. The tumor was in my right parietal cortex and was very large (it was about 180cc and described as “the size of a large orange”). My neurosurgeon later told me that I would die within two weeks without the surgery.
During the first two months after my diagnosis, I spent many hours on the Internet and in the library of our medical school, learning all that I could about possible treatment options. Initially, I read about boron neutron capture therapy, gene therapy, and radiation-loaded monoclonal antibodies that seemed much more promising than conventional treatment, but I didn’t try them on the basis of likely side effects and problems of various kinds. I therefore opted for conventional chemotherapy, but in combination with other agents that seemed to improve its effectiveness.
All my MRI scans following chemotherapy were clean. During my first year of treatment, I added various dietary supplements that can be obtained in most health food stores. The inspiration for the various treatments and adjuvant foods that I used came from different sources. Much of it stemmed from my research on Medline, and sometimes after hearing about treatment by participants in an online support group. I also found the Musella Foundation web page as a valuable source of information.
My therapeutic philosophy was very similar to the therapeutic approach developed for AIDS. Both HIV and cancer involve biological entities that change at a high rate, so unless a treatment is almost instantaneously effective, the dynamics of evolution will create new forms resistant to any treatment. However, if several treatments are used simultaneously (rather than sequentially as is usually the case), each mutation has a lower probability of being successful.
A second feature of my treatment philosophy is that any successful treatment must be of a systemic nature, since it is impossible to identify all the extensions of a tumor penetrating the healthy tissue.
Ben Williams, a 24-year survivor of a glioblastoma, is the author of the book Surviving Terminal Cancer printed in 2002: clinical trials, drug cocktails and other altri treatments your oncologist won’t tell you about. On the website virtualtrials.com, he published many updates of this book and as well as a 2017 update of the long report entitled “Treatment options for malignant gliomas.” To access these important sources, go to: https://virtualtrials.org/williams.cfm.
Dr Ben Williams
I have read your articles on your survival of GBM however the articles don’t say what the dosages you took to battle your fight against this terrible cancer. Are you able to share this information? My niece has recently been diagnosed and we are trying to put together a
Cocktail for her to take. If you can share it would be greatly appreciated. God Bless You
Dear Linda, I’m the father of Emanuele. His story is also in the story section of this website. If you go to the link source provided https://virtualtrials.org/williams.cfm you can find more information (in particular this publication https://virtualtrials.org/pdf2017/treatment_options_gbm_2017.pdf can be helpful). The reason I haven’t put the dosages is that you have to be followed by a doctor as the cocktail is a drug cocktail and you have to evaluate the toxicity of the treatments on the specific patient. A German team is preparing a Trial for the multi drug approach for newly diagnosed (they already succeeded for recurrent GBM). Have a look to one of the recent articles of this website. Sooner or later we will win the battle against GBM!
Dear Roberto,
My father has been diagnosed with Glioblastoma Grade 4. Where could I find the list of the drugs we should consider?
Many thanks.
John
Dear John,
an updated list of drugs is available on the chatbot which is connected to the virtual trials and clinical trials database.
Roby
Buenas tardes, a mi mamá le detectaron un tumor Gliosarcoma cerebral de grado 4 alguien que me pueda asesorar sobre los fármacos que se deben de dar y las proporciones, dejo mi número aquí 2227126647; gracias por su atención
Dear Linda,
I don’t know if it can help, but perhaps you can contact Prof. Dr. Marc-Eric Halatsch of the Ulm (Germany) University. He was part of the research that developed the CUSP9 Protocol and has been developing more personalized strategies using gene-assays of patients and specific drugs with the appropriate targets.
All the best,
Glenn
Yes! By the way Linda have a look to this article https://www.glioblastomamultiforme.it/en/coordinated-attack-to-the-signalling-paths-of-glioblastoma/
Hello,
I’d like to know whether such cocktail treatments are available in any country. I’m from Brazil and my father has been diagnosed with GBM. In time, he is doing the current treatment but prognostics are not good.
Thank you,
Álvaro
Dear Alvaro,
please download the Guide but ask a doctor. Normally the treatments are not Standard of Cure.
Ben Williams was lucky as he had the competences to decide himself the specific treatments and the money to buy them.
The specific treatments / drugs / supplements are available but the effect of toxicity can have on the sigle patient are different
and have to be constantly monitored.
CUSP9v3 is a clinical trial which follows an approach similar to the one followed by Ben Willians.
If it will succeed (this year probably is going on Phase 2) it will become available.
Roby
Hey Roberto, do you have any idea on how that trial has gone?
I haven’t been able to source any information on its results.
Study completion was estimated for 03-2020 ( https://clinicaltrials.gov/ct2/show/NCT02770378 ).
Wondering why the results haven’t been published yet – possibly due to undesirable findings?
Dear Jake, this is what the principal investigator says ” … The results of the phase I trial of CUSP9v3 have been submitted to the journal Cancers and are currently under review. A phase II is in its advanced stages of planning. This trial will compare CUSP9v3 against the second part of the SOC, i.e. adjuvant temozolomide, in newly diagnosed patients. In phase I on patients with recurrent GBM, 3 of 10 patients have become tumor-free and currently live longer than 3 years from study start. Tolerability was satisfactory …” here is the link to the pre-print https://www.researchsquare.com/article/rs-162394/v1 😉
There is a doctor in Peru who has had remarkable success with immunotherapy cancer treatments. Conventional medicine has now adopted his model, but they do “one size fits all” rather than the Peruvian doctor’s individualized approach. I think his name is Nunez, and he has a website describing his approach.
My sister who is 68 has been recently diagnosed with the aggressive brain tumour, 3 weeks ago had part of the tumour removed and next 3 weeks will be starting radiotherapy and chemo, can we try for clinical trials or is it to late? And where would I look, I already lost my other sister to the Same tumour and want to help fight for this sister.
Is it hereditary
Dear Lorraine, I’m sorry for your sister and I can tell you that normally this brain tumour is not hereditary … is due to mutation. Hereditary can be some other disease that can cause the tumour. Anyhow there are clinical trials that include people who already had surgery and radio and even chemio. It really depends on the recruiting rules of the specific trial. In order to find a clinical trial your should ask to the medical staff who is following your sister or have a look to websites like https://clinicaltrials.gov, select your country and the disease. Good luck! And remember you are not alone 😉
Dear Sir
My sister In Law Mrs. Neetu Munjal in New Delhi, India. She has been diagnosed GLIOBLASTOMA Grade – IV to document the medical necessity to treat her GLIOBLASTOMA with your cocktail of medicine.
Dear Sir, we came to know about you & your own cocktail treatment for GLIOBLASTOMA through an online search engine & few other reliable resources & gone through all your articles published in Musella Foundation and you are our last hope to save her life.
We have attached her case summary for your record and reference and hope you will understand the urgency of the patient’s condition, every single minute is important for us.
We will be highly obliged to you if we get any support from your side.
Hello…. What treatment did you follow?
Did you find the cocktails told by Williams in India?
Please do reply, I need urgent help.
A close relative got glioblastoma grade 4 and 98% of the tumor was successfully removed in London. We are interested in the treatment of medications that Professor Ben Williams had. Please kindly contact us
Dear Kalina,
please have a look to the guide of Ben Williams on treatment options:
https://virtualtrials.org/pdf2017/treatment_options_gbm_2017.pdf
You can contact Ben using the form a the bottom of the page:
https://virtualtrials.org/williams.cfm.
Dear Sir,
I have been diagnosed GLIOBLASTOMA Grade – IV at the end of Feb, I am in Ireland, so having Radiotherapy and Chemotherapy at moment, I bought your book and started to read from yesterday, you really give me the hugh hope, I read that you did lots of exercise during the radiation, I am feeling the exercise give me some energies too, therefore quite interested and see what type of exercises helped in your recommendation.
Kind regards
Dan
Dear Sir,
Another question from me about the cocktail treatment is the better stages, I think after radiation and Chemo treatments, then we can ask the doctors in the country we are in? Sorry for asking if it was answered previously.
Thanks
Dan
My 70 year old husband was diagnosed with Grade 4 glioblastoma 2/4/2020. On June 7, 2023 at his 4 month MRI they discovered what they believe to be a recurrence. A neurosurgeon at Ohio State University removed 99.9% of the right temporal tumor the first time, followed by a year of Temodor and 6 weeks of radiation. He has done very well and still is. He has no symptoms. John is planning to go through another surgery but we want to find another approach with the repurposed drugs. He takes supplements and is monitored by blood work. Only drugs he takes are a baby aspirin and blood pressure med. His A1c 6.1 and cholesterol 230 needs to be addressed. Please give us some information. Jan